Rare Disease Day 2021
Today is an important day for a lot of chronically ill individuals, especially those with rare diseases. Rare Disease Day used to only be on…
Parenting with Chronic Illness
I had someone ask me the other day if having so many kids was 'smart' since I am a mom with chronic illness. Honestly, I…
POTS, Hydration & PICC/CVC Lines
My CVC almost all healed up about 10 days after placement. (BARD PowerLine CVC) At my most recent neurology appointment my doctor and I had…
Rest and Recovery
Hello fellow spoonies and spoonie loved ones. I hope you all had a good weekend. Did anyone else over do it, over-indulge on Super Bowl…
Creeping Along on my Journey
Do you ever feel like the days are just dragging by? As if the time passing was the slow tick of the second hand on…
To Swim or Not To Swim? That is not a question!
Hello friends! I hope this finds you all doing well. I've spent a lot of time thinking about my recovery time from this surgery; going…
Continue reading → To Swim or Not To Swim? That is not a question!
I just cannot understand
Photo by Pixabay on Pexels.com I've written about my daughter many times before, I've written about my best friend, and well since this is her…
Stress… Stress… and More Stress!
Hello friends... I hope you're all doing well today. I'm sorry I've been absent the last couple of months. Things have been... well... out of…
Taking Care
I just want to preface this post by saying that I know it will be hard for a lot of people to listen to. Not…
Saying No, Healthy Boundaries
"Hey, so I was wondering, since you are so good at it, we would really appreciate your help with something. Can you?" No. "Your the…
