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Posted on February 28, 2021February 28, 2021

Rare Disease Day 2021

Today is an important day for a lot of chronically ill individuals, especially those with rare diseases. Rare Disease Day used to only be on…

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Posted on March 17, 2019

Parenting with Chronic Illness

I had someone ask me the other day if having so many kids was 'smart' since I am a mom with chronic illness. Honestly, I…

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Posted on March 11, 2019

POTS, Hydration & PICC/CVC Lines

My CVC almost all healed up about 10 days after placement. (BARD PowerLine CVC) At my most recent neurology appointment my doctor and I had…

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Posted on February 4, 2019

Rest and Recovery

Hello fellow spoonies and spoonie loved ones. I hope you all had a good weekend. Did anyone else over do it, over-indulge on Super Bowl…

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Posted on January 30, 2019

Creeping Along on my Journey

Do you ever feel like the days are just dragging by? As if the time passing was the slow tick of the second hand on…

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Posted on January 29, 2019January 29, 2019

To Swim or Not To Swim? That is not a question!

Hello friends! I hope this finds you all doing well. I've spent a lot of time thinking about my recovery time from this surgery; going…

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Posted on January 27, 2019January 27, 2019

I just cannot understand

Photo by Pixabay on Pexels.com I've written about my daughter many times before, I've written about my best friend, and well since this is her…

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Posted on January 18, 2019

Stress… Stress… and More Stress!

Hello friends... I hope you're all doing well today. I'm sorry I've been absent the last couple of months. Things have been... well... out of…

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Posted on December 10, 2018December 10, 2018

Taking Care

I just want to preface this post by saying that I know it will be hard for a lot of people to listen to. Not…

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Posted on November 27, 2018November 26, 2018

Saying No, Healthy Boundaries

"Hey, so I was wondering, since you are so good at it, we would really appreciate your help with something. Can you?" No. "Your the…

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